Tuesday, October 15, 2013
My Story
My name is cathy. I am 47 years old. I have had symptoms of systemic
lupus since 1980;s. I was finally diagnosed in 1996. After 3 miscarriages
i did finally have 2 children .I did not know of the lupus then nor did
my dr;s.In 1994 I started having alot of fevers, joint pain,rashes,
raynuads, hives. so i went to dr . they treated me just with ibuprofen &
sent me on my way. Finally in 1996 i got someone to take me seriously &
i was diagnosed with lupus. In 1999 my lupus was active so I started on
plaquenil, pred & immuran . methotrexate that year. In july 2000 i
started having odd neurological problems. i developed optic neuritis in my
left eye, severe spastic muscles in my arms & legs .having difficulty
walking nor standing. Up till this point i had been exercising & walking
1 hr a day. Once that started my life hasn;t been the same since.In the
years 2001 I tried to find out what was causing these problems but alot
of unknowns & not very knowledgable dr;s.After that I did not go to
dr;s till 2003.In 2003 I got a new primary & things started to go
different. He got me into see a new rheumatologist, neurologist & finally .now
in 2004 a neuro-opthamologist.The neuro-opthamologist discovered that i
have bilateral optic neuritis, myoclonus/spasticity, cns lupus/MS , vasculitis, &
antiphospholid syndrome.well hope to meet some new faces. new update as of April 2009 I'm officailly dx;d with Multiple Sclerosis. I am now on Betaseron injections.august 2010 dr has decided that my type of ms is rare called devics. treated same as other ms, but outcome could be worse.
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